Why do I accept Fibromyalgia?





Some days I look down at my feet and wonder why?

We were once best friends and they supported me in everything I did but now they do their own thing. Since Fibromyalgia, they let me down.



Why be nasty?
Why be so painful day and night?
Why can I not walk for miles pushing a pram like I used to?
Why do I now have to plan every aspect of my life as over doing it means I have a flare?

What is the need for that?

Why can I no longer wear beautiful stiletto heels?
Why did I get this shitty illness that makes me feel like a young woman trapped in an old ladies body?
Why do my legs throb like tooth ache?
Why do I feel tearful when I think back to old me and how I loved walking?
Why does it scare me to think that I may decline even more?

What muppet said it is not degenerative?

Why is my youngest wanting to save to buy me a mobility scooter when my legs WILL get better?
Why do I look at women in mobility scooters and think that will be me soon?
Why do people think I am lucky as I still look good yet I feel like shit?
Why do I have to hate my favourite season as the cold is more painful?
Why do mornings and getting out of bed feel like my bones will snap?
Why me?





My blog is about my real life, not some fabricated fluffed up glib life with a pink bow tied around it to deceive and gain more followers. I would rather have one reader and be truthful than a million and paint fibromyalgia as being a wonderful illness. It is cruel, painful and I hate it so much that some days I fear if I cried I would never stop. 

I wake each day and try my best to be thankful for everything in my life because I am a mother, to my two youngest I am a Mum & Dad as their Daddy died. 

I have five reasons not to let this illness steal my smile for more than a few minutes. I love my sons more than I HATE fibromyalgia so I accept it but only because I have to. 

I HATE FIBROMYALGIA SO MUCH. 


If fibromyalgia was a person the best revenge is being happy, and so I accept it because of that. 

Find your reason to accept it and the moments when you want to scream, cry and run away (metaphorically as our legs would not get us far!) just remember "me too" you are not alone for feeling this way. 


 Love and gentle hugs to you all

Find me also on


Also as admin for the group  WOMEN WITH FIBROMYALGIA

Comments

  1. I recently received a diagnosis of fibromyalgia after years of symptoms. Life is hard now and acceptance is a daily struggle for me. Thank you for your raw honesty...your words have imprinted my thoughts. Maybe...just maybe...I can accept this into my life.
    I wish you more good days than bad!!! <3

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    1. Huge thank you for reading my blog. I am humbled my words have made an impact on you. It is not easy to accept and it did take me time so I wish you all the love and support in the world. Love Ness xx

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    1. You made me smile, thank you Diane.
      Love and hugs Ness xxx

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  3. So true just been told I have fibromyalgia after 2 years of pain you said it so well.

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    1. Hi Dominique, Thank you for finding my blog and thank you for the support of liking posts on Facebook. It really means so much. Sorry you had to wait 2 years for a diagnosis. Love and hugs Ness xx

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  4. Thank you for caring and sharing with us. I've been diagnosed for 6 yrs now. All this time my mind set has been "I'm going to beat this thing." But, of course there is no beating it. My friends don't understand, though they think they do. My husband tries to understand and be supportive, which is good for me, but he does not really understand. I didn't understand myself until this winter. It is hard to believe my fate, but now I do.

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    1. Huge hug (sorry I do not have your name) I totally resonate with what you say. I find more comfort in reading blogs from people with the same illness than anything. I really felt alone and misunderstood. Even now times like this, I read your words and it was me. We all share that link and that alone makes us magical. Love and hugs Ness xxx

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  5. A gentle hug, I am so right there with you. I am older and my two kids are grown with kids of their own. I am a hands on grandma. I Hate Fibro. It has taken a lot of my joy for way to long. I feel like crying some days from the time I get up till I go to bed. And there are times when I have actually just stayed in bed. In the past few weeks I have come to realize that if I don't push myself I won't even get out of the house. I used to be so active. I pray that some point soon for you younger ladies that there is something that someone will come up with to really help. My grandma on my mom's side had this, back then there was no name. My mom and two aunts suffer some days with it. Mine is like my grandma Muncey's it is a daily, hour to hour days. Doc. say's it is one of the worst she has seen. Didn't mean to go on and on. Praying for you and your little ones. My hubby and kiddo's are great with me.

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    1. Hello Rev. Kim, thank you so much for sharing your story with me. Huge love and hugs sent your way Love Ness xxx

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  6. Love your honesty, Ness. This life of illness is SO hard. I can relate to trying to accept it and hold tight to the beauty (for me: my husband, pup and dear understanding friends). You are a beautiful soul. 💜

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    1. Kami, thank you so much. Your beautiful words made me smile so much today. So glad you also have someone to hold on to the beauty for. Massive love and hugs Ness xxx

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