Weight gain, dieting and Fibromyalgia



Today I shared a picture on facebook and it sparked a conversation regarding weight gain and dieting with Fibromyalgia so I decided to write a blog from the heart on my view of this subject.

Firstly can I just clarify,
I DO NOT look like my profile picture on facebook all the time, that was one moment in time.
I DO NOT look like my picture I use as the "all about me" section, that was one moment in time.
I spend most of my life in my pyjamas.

When I first became ill with Fibromyalgia it was following a nasty case of what I thought to be the flu, this was October-ish 2013. From that date till now I have never returned to my former self. It is almost like you walk into a cave and come out the other side a totally different person. Pre fibro I could walk for miles, lift heavy objects that part of me has now gone. I don't even lift my shopping bags into the boot of the car, my sister does it for me, that is how different I am now!

It came as no shock to me when the weight began to pile on, my life suddenly became VERY sedentary so naturally, my metabolism threw a hissy fit in protest. I felt sore, aching, bloated, spotty, meffy, fat, greasy, itchy, sensitive and raw. The best way I could describe myself was Elvis circ1976 when he was all fat and bloated. I felt like I had totally "let myself go" my prettiness was like sand running through my fingers as I tried to hold on. It obviously had an effect upon my confidence levels, there is no way at 42 years of age it could not have a negative effect.




Imagine feeling ill and lifeless and wanting to wake up and put your makeup on and be "pretty" but you just feel so ill? It was horrible in the acceptance phase.

Fibromyalgia often causes weight gain, I was well aware of this.  It is a result of hormonal imbalances, affecting levels of cortisol, thyroid, serotonin and insulin, as well as the production of growth hormones. Because of this hormonal imbalance, metabolism slows down and weight gain often follows. Some medications can make people gain excess weight, but I was not on this medication but still the weight piled on!

I was in so much pain it made me less active so I burnt fewer calories and produced unwanted weight gain. My body was forced into a fat-storing mode where it converts this extra glucose into fatty tissue.

I spent the next eighteen months or so wondering what the heck had happened to me? Then began a new lifestyle plan that was a lot healthier, packed with nutrients, vitamins, and water and I was cured, free of fibromyalgia and lost all my excess weight....

Obviously, I am joking as this kind of bullshit only comes from the mouth of someone trying to sell you something. 

Daily I blog regardless of this and I post images on social media with hashtags for health and fibro. I am very open to the healing properties of food, superfoods, nutritional values of a balanced diet. Reducing refined sugar does have improvements on symptoms, some claim a gluten-free diet helps greatly, low GI foods and their slow release of energy is essential. I do not feel that diet caused my illness so I do not feel that diet alone is the answer, it is very helpful in management, though. I follow a sugar-free diet and eat healthily, yet I suffer daily and can not get through a full day without sleeping during the waking hours.  Diet alone is not "curing" me or even managing my flares. It has made my skin less puffy and I do feel like I look better aesthetically. Initially on the plan, I lost 5 inches from my waist but that now fluctuates daily as I have IBS. 

So in answer to the question 
Can I recommend a diet to lose weight when you have Fibromyalgia? 
I do not think it is possible at all. But fibro has very wide parameters and we all suffer in varying degrees. Some of us may be able to continue to work, go to the gym and continue with life as normal whilst others are on a different stage with this illness. We are not here to judge each other and point fingers at who is the fattest, society does that to us enough. 

THIS IS ME and I have to accept that I am not getting any thinner but is that really the end of the world?

Who said you have to be thin to be beautiful?

According to BMI, I am currently 3 stone plus overweight and yet I eat a healthy diet. So what am I doing wrong?

I refuse to starve myself, skip meals, start on a fad diet or become stressed by trying to be the average BMI when I have spent my life rebelling from the norm. I never asked for this illness so why should I feel less a woman if one of the symptoms is weight gain? That is bloody nuts!

The biggest mistake you can do is compare yourself to anyone on facebook/Instagram or twitter as social media world is the biggest bullshit fake existence there is. So yes I do have a pretty profile picture with my makeup on and my hair done nicely. When people talk to me they must think that is the person they are chatting to but the reality is I am usually in my pyjamas snuggled with a blanket and a cup of tea. I detest wearing makeup in the house and I never wear a bra when I am at home. I am no different a chronic ill person than you are and I will never pretend to be either.



There are seven days in a week if one of them days is a good day and I get a nice selfie and post it then don't be fooled into thinking I am well or beaten this illness and you are a failure. Usually, on that good day I will over do it and be ill for a few days after, and so the cycle continues.




Do I worry I will become more ill, lethargic and become bigger and bigger?

No, not really as I am not a worrier. If it happens, it happens. I will simply embrace all the amazing assets I have instead of focusing on weight gain.

Today I realised that the girl with fibromyalgia I always look at and think "she always looks nice" is looking at me and thinking the same. We laughed as we both compared our love of pyjama and accepting our mingy meff days but still loving our nice pictures when we have a good day.

Don't feel inadequate with fibro and weight gain. We are all the same deep down and you are not alone with your insecurities, we need to love our curves as they are part of who we are now.

 Love and gentle hugs to you all

Ness

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Comments

  1. This just feels like you are talking right to me, everything is just spot on.

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    Replies
    1. Hi Rhonda, thank you so much. It makes me smile when people relate to what I write. Sorry you are the same as me, but it is comforting to know we are not alone and there are people who fully understand.
      Love and hugs Ness xxx

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  2. Dearest Ness,
    I really wish I could feel as positive about the weight gain as you. I can not look at myself and feel pretty let alone beautiful. I have been battling this demon for 5 year and I just want to give up. I am so tired of feeling this way all the time. I'm sick of the pain and just wish to have my life back. I can always hope and pray the day will come that they will find that miracle cure or the majic pill that doesn't sit me flat on my backside holding a bucket waiting for the nausia to go away. I wish you all the best and hope one day we can both be out of pajamas for more eye than a few hours. Take care and all the best.
    Jeanette.
    ❌❤️

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    Replies
    1. Hi Jeanette, I am the same, I think we all live with the hope that one day a side effect pill will come along and cure us of this horrible illness. Some don't grasp how mean and cruel Fibromyalgia is so it always comforts me knowing I am not alone and some people fully understand what I feel like.
      Massive love and hugs to you.
      Ness xx

      Delete
  3. Dearest Ness,
    I really wish I could feel as positive about the weight gain as you. I can not look at myself and feel pretty let alone beautiful. I have been battling this demon for 5 year and I just want to give up. I am so tired of feeling this way all the time. I'm sick of the pain and just wish to have my life back. I can always hope and pray the day will come that they will find that miracle cure or the majic pill that doesn't sit me flat on my backside holding a bucket waiting for the nausia to go away. I wish you all the best and hope one day we can both be out of pajamas for more eye than a few hours. Take care and all the best.
    Jeanette.
    ❌❤️

    ReplyDelete
    Replies
    1. Hi Jeanette, I am the same, I think we all live with the hope that one day a side effect pill will come along and cure us of this horrible illness. Some don't grasp how mean and cruel Fibromyalgia is so it always comforts me knowing I am not alone and some people fully understand what I feel like.
      Massive love and hugs to you.
      Ness xx

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  4. I really needed to see that after having a crappy day where I felt that I did not want to live my life anymore because the pain I feel from working makes me depressed that I do not want to be here anymore. I feel alone and that people who do not have this condition do not understand and are not sympathetic to my pain, depression, or moods.

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    Replies
    1. Please believe me there is loads of wonderful things to live for. I am sorry that you are in such a dark place at the moment. The more people like us that share our stories about what it is really like then the better understood our illness will be.
      You never asked to be unwell so don't allow it to steal your life. Happy days are ahead, even if they are happy days being ill just finding simple things to smile about.
      Don't ever feel alone, I am always here if you need me.
      Massive love Ness xx

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    2. Hi Ness,I have gained 2/3 stone since my diagnosis, sometimes it upsets me other times I think so what.
      Until I saw a old school friend on Facebook,she is so glamorous I can't bring myself to friend request her.
      Now I am so depressed with myself. So reading your blog has
      Lifted me a bit.thanks Maureen

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    3. Maureen, don't worry you are not alone. We all have the glamorous friend with the perfect hair, nails and body but I bet they have their own insecurities. Massive hugs and I am so glad my blog made you feel a bit better. Love and hugs Ness xxx

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  5. Hi Ness, I so relate to your words. I've gone from a size 12 to a size 18 in 10 years because of fibro. I hate the thought of seeing people that I haven't seen since the weight piled on. I'm going to a wedding next year and I really want to lose weight for that, but I know that's just wishful thinking. Thank you for letting me know that it's okay to accept myself the way I am.

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  6. I love this so much. Eating healthy has had 0 effect on my weight since I've gotten sick, and diet changes have had 0 effect on my illness. I've gained weight since I got sick, but I don't sweat it too much. Sure I'd like to be smaller, but if I'm wishing for things I'd rather not be sick!

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    Replies
    1. Thank you so much. So sorry for my late reply I have been so bogged down over the winter months I totally forgot about blog comments. Huge love and hugs Ness xxxx

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